Identifying Barriers to Enrollment in Patient Pregnancy Registries: Building Evidence Through Crowdsourcing.
Jeanne M PimentaJeffery L PainterKim GemzoeRoger Abramino LevyMarcy PowellPaige MeizlikGregory PowellPublished in: JMIR formative research (2022)
In this case, crowdsourcing efficiently obtained patient and rheumatologist input, with some patients with SLE continuing to use belimumab during or while planning a pregnancy. There was moderate awareness of the BPR among patients and physicians.