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The Experiences of Patients With Adjuvant and Metastatic Melanoma Using Disease-Specific Social Media Communities in the Advent of Novel Therapies (Excite Project): Social Media Listening Study.

Guy FaustAlison BoothEvie MerinopoulouSonia HalholHeena TosarAmir NawazMagdalena SzlachetkaGavin Chiu
Published in: JMIR cancer (2022)
This study explored health-related social media to better understand the experience and perspectives of patients with melanoma receiving immunotherapy or targeted therapy treatments as well as the experience of their caregivers. This exploratory work uncovered the most discussed concerns among patients and caregivers on the forums including symptoms and their impacts, thus contributing to a deeper understanding of the patient/caregiver experience.
Keyphrases
  • social media
  • health information
  • palliative care
  • early stage
  • quality improvement
  • depressive symptoms