Conversion to secondary progressive multiple sclerosis: Multistakeholder experiences and needs in Italy.
Ambra Mara GiovannettiErika PietrolongoClaudia BorreaniAndrea GiordanoInsa SchiffmannAnna BarabaschChristoph HeesenAlessandra Solarinull nullPublished in: PloS one (2020)
Two are the main findings: first, the widespread lack of awareness around the transition; second, the need to improve the quality of the care pathway in the Italian context. It was particularly stressed the need for a holistic and multidisciplinary approach (with patients and SOs as members of the team), the development of an ad hoc plan of follow up visits with easy access to MS specialists' consultation/treatment; specialized training for each stakeholders; more information on SPMS, daily management and changes at policy level.