Burden of Wilson Disease among patients and care partners in the United States: results from a cross-sectional survey.

Jon VlasnikM Janelle Cambron-Mellott Halley Costantino Mary Kunjappu

Published in: Current medical research and opinion (2024)

This study highlights the burden of WD experienced by patients and WD-CPs, with patients experiencing high treatment burden, comorbidity burden and healthcare resource utilization, and WD-CPs experiencing high impact of caring, including impact on employment and self-esteem.

Keyphrases

healthcare
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
prognostic factors
risk factors
palliative care
chronic pain
social media
mental illness