Undertaking responsibility and a new role as a relative: a qualitative focus group interview study.
Malene Kaas LarsenRegner BirkelundMichael Bau MortensenHelen SchultzPublished in: Scandinavian journal of caring sciences (2020)
Relatives of patients with oesophageal cancer undergoing treatment are suppressing their anxiety and doubt about the future. As they are undertaking responsibility during treatment, they are claiming control in new areas, which leads to changing roles within the family. However, they do not feel empowered in decision-making because they recognise patients' decision-making authority. This study highlights the complexity of balancing patients' authority with acknowledgement of relatives' role as active collaborators.