Systemic amyloidosis journey from diagnosis to outcomes: a twelve-year real-world experience of a single center in a middle-income country.
Roberta Shcolnik SzorFabio FernandesAngelina Maria Martins LinoLeonardo Oliveira MendonçaFernanda Salles SeguroValkercyo Araujo FeitosaJussara Bianchi CastelliLecticia Barbosa JorgeLucas Bassolli de Oliveira AlvesPrecil Diego Miranda de Menezes NevesEvandro de Oliveira SouzaLivia Barreira CavalcanteDenise MalheirosJorge KalilGracia Aparecida MartinezVanderson Geraldo RochaPublished in: Orphanet journal of rare diseases (2022)
Systemic amyloidosis is still an underdiagnosed condition and the delay in its recognition leads to poor outcomes. Medical education, better diagnostic tools, improvement in access to therapies, and establishment of referral centers may improve patient outcomes in middle-income countries.