Health-related quality of life, direct medical and societal costs among children with moderate or severe haemophilia in Europe: multivariable models of the CHESS-PAEDs study.
Aubri M KottekPronabesh DasMahapatraTom BurkeZalmai HakimiJosé Bartelt-HoferJameel NazirJamie O'HaraPublished in: Orphanet journal of rare diseases (2022)
Children with haemophilia and their caregivers displayed a significant economic and humanistic burden. While severe patients showed the highest direct medical and societal costs, and worse HRQoL, the burden of moderate haemophilia on its own was substantial and far from negligible.