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Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases.

Melanie SloanRupert HarwoodStephen SuttonDavid D'CruzPaul HowardChris WincupJames BrimicombeCaroline Gordon
Published in: Rheumatology advances in practice (2020)
Patient responses indicated that timely diagnosis could be facilitated if physicians had greater knowledge of lupus/related systemic autoimmune diseases and were more amenable to listening to and believing patient reports of their symptoms. Patient priorities included physicians viewing them holistically, with more emotional support and assistance in improving quality of life, especially in relation to fatigue.
Keyphrases
  • case report
  • systemic lupus erythematosus
  • primary care
  • sleep quality
  • disease activity
  • emergency department
  • rheumatoid arthritis
  • depressive symptoms