Data standards in pediatric oncology: Past, present, and future.

Kirk D WyattDavid H NoydNicole M WoodCharles A PhillipsTamara P MillerElyssa M RubinLena E WinestoneAngela J WaandersJohn P PerentesisRichard Aplenc

Published in: Pediatric blood & cancer (2022)

In this commentary, we highlight the central role that data standards play in facilitating data-driven efforts to advance research in pediatric oncology. We discuss the current state of data standards for pediatric oncology and propose five steps to achieve an improved future state with benefits for clinicians, researchers, and patients.

Keyphrases

palliative care
electronic health record
big data
end stage renal disease
newly diagnosed
ejection fraction
prognostic factors
peritoneal dialysis
data analysis
quality improvement
machine learning