From "being at war" to "getting back on your feet": A qualitative study on experiences of patients with systemic sclerosis treated with hematopoietic stem cell transplantation.
Julia SpieringsCarolijn Jm de BresserFemke Cc van Rhijn-BrouwerArwen PieterseMadelon C VonkAlexandre E VoskuylJeska K de Vries-BouwstraJacob M van LaarMarijke C KarsPublished in: Journal of scleroderma and related disorders (2020)
Hematopoietic stem cell transplantation has a major physical and psychological impact on patients with diffuse cutaneous systemic sclerosis. The course of recovery after this intensive therapy was unexpectedly long for some patients and offer of support was far less pro-active post-HSCT compared to pre-HSCT and during HSCT.
Keyphrases
- systemic sclerosis
- interstitial lung disease
- end stage renal disease
- newly diagnosed
- hematopoietic stem cell
- mental health
- acute myeloid leukemia
- ejection fraction
- chronic kidney disease
- physical activity
- prognostic factors
- stem cells
- depressive symptoms
- low grade
- anti inflammatory
- rheumatoid arthritis
- high grade
- idiopathic pulmonary fibrosis
- patient reported