Supported decision-making with persons with dementia: a scoping review protocol in partnership with lived experts.
Tamara SussmanXue Ping MaOluwagbemiga OyinlolaAmanda GrenierM Ariel CascioLynn McClearyPaulette V HunterMaryse SoulièresRym ZakariaPublished in: BMJ open (2024)
This scoping review will be conducted following the standards of the Tri-Council Policy Statement for Ethical Conduct for Research Involving Humans (1998 with 2000, 2002 and 2005 amendments). The procedures for eliciting feedback from persons with dementia and their care partners were approved by the Office of Research Ethics Board at McGill University (Reference # 23-08-048). Dissemination of review findings to persons with dementia and care partners will occur during ongoing community consultations. Visual aids and brief lay summaries will be used to facilitate input and dialogue. Dissemination to the broader practice and research communities will include workshops conducted in collaboration with study partners and presentations and publications in peer-reviewed forums.
Keyphrases
- healthcare
- mild cognitive impairment
- decision making
- cognitive impairment
- quality improvement
- palliative care
- hiv testing
- public health
- mental health
- primary care
- men who have sex with men
- pain management
- affordable care act
- machine learning
- human immunodeficiency virus
- general practice
- deep learning
- antiretroviral therapy