Patients' Perspectives, Experiences, and Concerns With Perianal Fistulae: Insights From Online Targeted-Disease Forums.

Carine KhalilWelmoed K van DeenTaylor DupuyGaurav SyalCorey ArnoldSusan E CazzettaPradeep P NazareyChristopher V AlmarioBrennan M R Spiegel

Published in: Crohn's & colitis 360 (2023)

Social media reveals a dynamic range of themes governing patients' perspectives and experiences with Crohn's perianal fistulae. In addition to the biopsychosocial burden, patients frequently express dissatisfaction with current treatments and often struggle to navigate among available management options.

Keyphrases

social media
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
mental health
health information
drug delivery
risk factors
patient reported outcomes
patient reported