Cleft and Craniofacial Multidisciplinary Team Clinic: A Look at Attrition Rates for Patients With Complete Cleft Lip and Palate and Nonsyndromic Single-Suture Craniosynostosis.

Danielle C CooperErin C PetersonCheryl G GrellnerSybill D NaidooGary B SkolnickKristin D PfeifaufMatthew D SmythAlison K Snyder-WarwickKamlesh B Patel

Published in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2019)

Overall, attrition rates were high at our institution. Many patients are lost to follow-up prior to receiving key medical interventions. Improved family education and personalized care are needed to help ensure continuity of care.

Keyphrases

healthcare
quality improvement
palliative care
end stage renal disease
chronic kidney disease
ejection fraction
newly diagnosed
primary care
prognostic factors
peritoneal dialysis
physical activity
patient reported outcomes