Factors Influencing Patient Disclosure of Parkinson's Disease Genetic Testing Results to Relatives.
Jeanine SchulzeJasmine Kaur DhaliwalMandy MillerEmily A QuinnLeah WetherillLola CookPublished in: Movement disorders clinical practice (2024)
Disclosure rates in this PD population were consistent with those in previously reported populations. Motivations were anchored in perceptions of utility and family desire for information, suggesting a need to adjust patient education to improve retention and to explore family dynamics and perceptions of results.