Mobile Apps for People With Rare Diseases: Review and Quality Assessment Using Mobile App Rating Scale.
Sarah HatemJanet C LongStephanie BestZoe FehlbergBróna Nic Giolla EaspaigJeffrey BraithwaitePublished in: Journal of medical Internet research (2022)
Most apps provided factual and visual information, providing tools for self-monitoring and resources to help improve interactions during health consultations. App origin and quality varied greatly. Developers are recommended to consider ways to make appropriate apps more easily identifiable to consumers, to always include high-quality information, improve engagement, provide qualitative evaluations of the app, and include consumers and clinicians in the design.