Experiencing illness as a crisis by the caregivers of individuals with Prader-Willi Syndrome.

Katarzyna KowalMichał SkrzypekJanusz Kocki

Published in: PloS one (2022)

Identifying phases of the PWS experience process from the perspective of the caregivers of individuals with PWS may be used to profile interventions supporting PWS individuals' families in a manner corresponding to the flow of the illness experience.

Keyphrases

palliative care
public health
physical activity
growth hormone
case report