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Living with autoinflammatory diseases: identifying unmet needs of children, adolescents and adults.

Gabriele ErbisKirstin SchmidtSandra HansmannTetiana SergiichukChristine MichlerJasmin B Kuemmerle-DeschnerSusanne M Benseler
Published in: Pediatric rheumatology online journal (2018)
Unmet needs of AID patients and families affect all areas of life. Accessible networks increasing knowledge and empowering patients, strategies supporting academic and workplace environments to ensure successful participation and integrated concepts addressing psychosocial needs are urgently needed.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • newly diagnosed
  • young adults
  • healthcare
  • physical activity
  • patient reported
  • medical students