Living with autoinflammatory diseases: identifying unmet needs of children, adolescents and adults.
Gabriele ErbisKirstin SchmidtSandra HansmannTetiana SergiichukChristine MichlerJasmin B Kuemmerle-DeschnerSusanne M BenselerPublished in: Pediatric rheumatology online journal (2018)
Unmet needs of AID patients and families affect all areas of life. Accessible networks increasing knowledge and empowering patients, strategies supporting academic and workplace environments to ensure successful participation and integrated concepts addressing psychosocial needs are urgently needed.