Informed Choice for Participation in Down Syndrome Screening: Development and Content of a Web-Based Decision Aid.
Mette Maria SkjoethHelle Ploug HansenEva DraborgClaus Duedal PedersenRonald Francis LamontJan Stener JørgensenPublished in: JMIR research protocols (2015)
This paper describes the development and content of an interactive website to support pregnant women in making informed choices about Down syndrome screening. To develop the website, we used a well-structured process based on scientific evidence and involved pregnant women, care providers, and technology experts as stakeholders. To our knowledge, there has been no research on the combination of IPDAS standards and the CeHRes roadmap to develop an eHealth tool to target information about screening for Down syndrome.