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Decision Making When Cancer Becomes Chronic: Needs Assessment for a Web-Based Medullary Thyroid Carcinoma Patient Decision Aid.

Danielle ShojaieAubri S HoffmanRuth AmakuMaria E CabanillasJulie Ann SosaSteven G WaguespackMark E ZafereoMimi I HuElizabeth E Grubbs
Published in: JMIR formative research (2021)
Patients, families, and providers report multifaceted decision support needs during the chronic phase of cancer. Web-based patient decision aids that provide tailored support over time and explicitly address uncertainty, quality of life, realistic expectations, and effects on families are needed.
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