Sickle cell disease in Australia: a snapshot from the Australian Haemoglobinopathy Registry.
Anna Clare NelsonP Joy HoHelen HaysomNeil WatersCameron WellardMelissa CheeJuliana TeoAnthea GreenwayKylie MasonGiselle Kidson-GerberZane KaplanTina CarterMerrole F Cole-SinclairPasquale BarbaroErica Michelle Woodnull nullPublished in: Internal medicine journal (2023)
This study provides the first national picture of SCD in Australia, describing the characteristics and needs of SCD patients, elucidating demand for current and novel therapy and facilitating the planning of services for this vulnerable population.