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Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care.

A E PritchardT A ZabelLisa A JacobsonE JonesCalliope B HolingueL G Kalb
Published in: AJOB empirical bioethics (2020)
Overall, caregivers reported strong support for use of their child's clinical data for research purposes.
Keyphrases
  • palliative care
  • healthcare
  • electronic health record
  • mental health
  • quality improvement
  • big data
  • data analysis
  • deep learning
  • health insurance