Desmoid fibromatosis through the patients' eyes: time to change the focus and organisation of care?

Olga HussonEugenie YoungerAlison DunlopLucy DeanDirk C StraussCharlotte BensonAndy J HayesAisha MiahWinan van HoudtShane ZaidiMyles SmithJohn WilliamsRobin L JonesWinette T A van der Graaf

Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2018)

DF patients face complex physical, psychological and practical challenges. Comprehensive care services are needed. Increasing awareness may help to improve diagnostic pathways and overall patient experience.

Keyphrases

healthcare
end stage renal disease
ejection fraction
prognostic factors
peritoneal dialysis
primary care
quality improvement
patient reported outcomes
chronic pain