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A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food.

Jenna RinesKim DaleySunny LooKwestan SafariDeirdre WalshMarlyn GillPaul MoayyediAida FernandesNancy J MarlettDeborah A Marshall
Published in: Health expectations : an international journal of public participation in health care and health policy (2022)
The first four authors on this paper were the lead researchers in this study's design and analysis and identify as patients; they conducted the research with this identity at the forefront following a peer-to-peer research model. These authors were mentored by patient researchers who also contributed to the manuscript, and the research process itself was co-lead and directed by other patient participants and consultants. Results and recommendations coming from this paper came directly from patient participants.
Keyphrases
  • case report
  • young adults
  • end stage renal disease
  • newly diagnosed
  • chronic kidney disease
  • mental health
  • ejection fraction
  • risk assessment
  • peritoneal dialysis
  • climate change