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Common themes and challenges in hemophilia care: a multinational perspective.

Jayson M StoffmanNadine G AnderssonBrian R BranchfordK BattRoseline d'OironC Escuriola EttingshausenD P HartV Jiménez YusteKaan KavakliMaria Elisa MancusoK NogamiC RamírezR Wu
Published in: Hematology (Amsterdam, Netherlands) (2018)
AHCDC: Association of Hemophilia Clinic Directors of Canada; AICE: Italian Association of Hemophilia Centres; ATHN: American Thrombosis and Hemostasis Network; EAHAD: European Association for Haemophilia and Allied Disorders; EHC: European Hemophilia Consortium; FIX: Coagulation Factor IX; FVIII: Coagulation Factor VIII; HAL: Haemophilia Activity List; HJHS: Haemophilia Joint Health Score; HTC: Hemophilia Treatment Centre; HTCCNC: Hemophilia Treatment Centre Collaborative Network of China; MASAC: Medical and Scientific Advisory Council; MDT: Multidisciplinary team; NHD: National Haemophilia Database; NHF: National Hemophilia Foundation; PK: Pharmacokinetics; POCUS: Point of care ultrasound; PWH: People with haemophilia; SHIELD: Supporting Hemophilia through International Education, Learning and Development; WFH: World Federation of Hemophilia.
Keyphrases
  • quality improvement
  • healthcare
  • palliative care
  • public health
  • primary care
  • magnetic resonance imaging
  • computed tomography
  • risk assessment
  • chronic pain
  • social media
  • affordable care act
  • health insurance