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Reliability and validity of patient-reported outcome instruments in US adults with hemophilia B and caregivers in the B-HERO-S study.

Tyler W BucknerRobert SidonioChristine GuelcherCraig M KesslerMichelle WitkopDavid ClarkWendy OwensMoshe FridmanNeeraj N IyerDavid L Cooper
Published in: European journal of haematology (2018)
Patient-reported outcomes instruments administered in B-HERO-S demonstrated reliability and validity in the broader population of adults with hemophilia B and caregivers when including all severities and genders.
Keyphrases
  • patient reported outcomes
  • palliative care