Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents.
Ann-Marie KassaM Dellenmark-BlomJ Thorsell CederbergG EngvallH Engstrand LiljaPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2019)
Although children and adolescents with VACTERL association reported similar HRQoL to those of European children with chronic conditions, their psychological well-being was comparable to Swedish school children in general. Nevertheless, some individuals among both children and parents were in need of extra support. This attained knowledge is valuable when counselling parents regarding the prognosis for children with VACTERL association.