Psychosocial impact of epidermolysis bullosa on patients: A qualitative study.

Nimrita SanghaA Nikolas MacLellan Elena Pope

Published in: Pediatric dermatology (2021)

Our findings highlight the psychosocial impact of EB on patients. As EB awareness and resources to support patients and caregivers have improved since this study was conducted, more studies exploring the current landscape and opportunities to improve quality of life are needed.

Keyphrases

end stage renal disease
ejection fraction
chronic kidney disease
newly diagnosed
peritoneal dialysis
mental health