The US national registry for childhood interstitial and diffuse lung disease: Report of study design and initial enrollment cohort.
Rebekah J NevelGail H DeutschDaniel CravenRobin DeterdingMartha P FishmanJennifer A WambachAlicia M H CaseyKatie A KroneDeborah R LiptzinMichael G O'ConnorGeoffrey KurlandJane B TaylorWilliam A GowerJames S HagoodCarol K ConradJade B Tam-WilliamsElizabeth K FiorinoSamuel GoldfarbS Christy SadreameliLawrence M NogeeGregory MontgomeryAaron HamvasTheresa A LagunaManvi BansalCheryl LewMaria Teresa SantiagoAntonia PopovaAliva DeMarilynn ChanMichael R PowersMaureen B JosephsonDevaney CamburnLaura VossYun LiLisa R Youngnull nullPublished in: Pediatric pulmonology (2023)
This Registry is the largest longitudinal chILD cohort in the United States to date, providing a powerful framework for collaborating centers committed to improving the understanding and treatment of these rare disorders.