The early years: hirschsprung disease and health-related quality of life.

Fern Ee Caryn Koo Man Ching Esther Chan Sebastian K King Misel Trajanovska

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2023)

Despite overall positive results for children, parents reported elevated symptoms of anxiety. This study highlights the importance of long-term follow-up care for HD patients and their families.

Keyphrases

end stage renal disease
ejection fraction
chronic kidney disease
newly diagnosed
healthcare
palliative care
young adults
sleep quality
peritoneal dialysis
prognostic factors
quality improvement