Is rare cancer care organized at national health system level? Multiple case study in six EU countries.
Joan PradesAnnalisa TramaPaolo Giovanni CasaliJean François EmileNathalie GasparRamunas JanaviciusRasa JančiauskienėSakari KarjalainenKaterina KopeckovaLiisa PylkkanenMarek SvobodaJosep M BorrasPublished in: European journal of public health (2022)
The conditions governing patient access to treatment centres-whether RCs or not-are decided at the national level. It is advisable to progressively align the European and national levels so that the RCs that participate in the ERNs also play a significant role at the national level.