Understanding the Experience of Cancer Pain From the Perspective of Patients and Family Caregivers to Inform Design of an In-Home Smart Health System: Multimethod Approach.
Virginia T LeBaronRachel BennettRidwan AlamLeslie BlackhallKate GordonJames HayesNutta HomdeeRandy A JonesYudel MartinezEmmanuel OgunjirinTanya ThomasJohn LachPublished in: JMIR formative research (2020)
Smart health systems to support cancer pain management should (1) account for the experience of both the patient and the caregiver, (2) prioritize passive monitoring of physiological and environmental variables to reduce burden, and (3) include functionality that can monitor and track medication intake and efficacy; wellness variables, such as sleep quality and quantity, physical activity, mood, and oral intake; and levels of social interaction and engagement. Systems must consider privacy and data sharing concerns and incorporate feasible strategies to capture and characterize rapid-onset symptoms.
Keyphrases
- sleep quality
- pain management
- physical activity
- papillary thyroid
- chronic pain
- healthcare
- depressive symptoms
- end stage renal disease
- squamous cell
- social media
- big data
- ejection fraction
- health information
- newly diagnosed
- prognostic factors
- mental health
- chronic kidney disease
- body mass index
- weight gain
- bipolar disorder
- emergency department
- peritoneal dialysis
- case report
- electronic health record
- risk assessment
- machine learning
- young adults
- human health
- deep learning
- sensitive detection