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Time use of parents raising children with severe or profound intellectual and multiple disabilities.

Jorien LuijkxA A J van der PuttenC Vlaskamp
Published in: Child: care, health and development (2017)
This study shows that the parents of children with PIMD have to spend a significant amount of time on care tasks and have on average 1.5 h less free time per day than parents of typically developing children. This is a striking difference, because leisure time can substantially contribute to well-being. Therefore, it is important not only to consider a child with PIMD's support needs but also to identify what parents need to continue their children's daily care and supervision.
Keyphrases
  • young adults
  • healthcare
  • physical activity
  • palliative care
  • mental health
  • quality improvement
  • intellectual disability
  • affordable care act