Improving Clinical Registry Data Quality via Linkage With Survival Data From State-Based Population Registries.
Samuel SmithKatharine J DrummondAnthony DowlingIwan BennettDavid CampbellRonnie FreilichClaire PhillipsElizabeth AhernSimone ReevesRobert CampbellIan M CollinsJulie JohnsMegan DumasWei HongPeter GibbsLucy GatelyPublished in: JCO clinical cancer informatics (2024)
As revealed by linkage with BDM, a high proportion of patients in a brain cancer clinical registry had missing death data, contributed to by informative censoring, inflating OS calculations. DL to pertinent registries on an ongoing basis should be considered to ensure accurate reporting of survival data and interpretation of RWD outcomes.
Keyphrases
- electronic health record
- big data
- end stage renal disease
- chronic kidney disease
- newly diagnosed
- genome wide
- gene expression
- emergency department
- data analysis
- type diabetes
- multiple sclerosis
- white matter
- young adults
- high resolution
- adverse drug
- dna methylation
- hiv testing
- papillary thyroid
- men who have sex with men
- density functional theory
- resting state
- insulin resistance
- deep learning