Health utilities and parental quality of life effects for three rare conditions tested in newborns.

Norma-Jean SimonJohn RichardsonAyesha AhmadAngela M RoseEve WittenbergBrittany D'CruzLisa A Prosser

Published in: Journal of patient-reported outcomes (2019)

Rare childhood conditions are associated with substantial estimated losses in quality of life. Evidence of disutility among parents further warrants the inclusion of spillover effects in cost-effectiveness analyses. Continued research is needed to assess and measure the effects of childhood disease from a family perspective.

Keyphrases

public health
mental health
early life
health information
climate change
risk assessment
social media