Self-reported measures in health research for people with intellectual disabilities: an inclusive pilot study on suitability and reliability.
Kristel Vlot-van AnrooijHilde TobiThessa I M HilgenkampGeraline L LeusinkJenneken NaaldenbergPublished in: BMC medical research methodology (2018)
This study served as a pilot of an inclusive process in which people with ID collaborated in adjusting, testing, and reflecting on self-reported health scales. Although the adjusted self-reported measurements may be reliable and suitable to the target group, the adjustments needed may impair measurement precision. This study's results contribute to informed decision making on the adaptation and use of self-reported health scales for people with ID.