Living with facioscapulohumeral muscular dystrophy during the first two COVID-19 outbreaks: a repeated patient survey in the Netherlands.
Johanna C W DeenenJoost KoolsAnna GrecoRenée ThewissenWiecke van de PutAnke LanserLeo A B JoostenAndre L M VerbeekBaziel G M van EngelenNicol C VoermansPublished in: Acta neurologica Belgica (2024)
The COVID-19 pandemic negatively impacted care received and increased perceived psychosocial stress in FSHD patients. However, COVID-19 infection incidence in FSHD patients was similar to their non-FSHD housemates.