Quantifying the insurance value for rare diseases: Duchenne muscular dystrophy.
Jason ShafrinSuhail ThahirAlexa C KlimchakIvana AudhyaLauren E SeditaJohn A Romley
Published in: The American journal of managed care (2024)
Individuals planning to have children in the future are willing to pay more for insurance coverage of novel DMD treatments than is assumed under risk-neutral, QALY-based frameworks.