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The connected patient project: moving towards a population-based primary health care research registry.

Dorothy CoeAngela BirtGareth ForbesJonathan LingMichael FosterStephen RobsonJoe McDonaldYan Yiannakou
Published in: BMC health services research (2021)
A registry of patients was established; however, the response rate of 24% needs increasing before wider adoption. Health promotion and chronic disease-based research may recruit better when based in primary health care. Older demographics would be more likely to volunteer for research. NHS and academic researchers are trusted, commercial organisations less so. The move to digitalise communication methods has the potential to marginalise older women. Findings were used to drive forward two novel developments: a consent registry (Research+Me) and a federation-wide participant identification process.
Keyphrases
  • health promotion
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • peritoneal dialysis
  • prognostic factors
  • patient safety
  • electronic health record
  • community dwelling
  • human health