The challenge of community engagement and informed consent in rural Zambia: an example from a pilot study.
Joseph Mumba ZuluIngvild Fossgard SandøyKaren Marie MolandPatrick MusondaEcloss MunsakaAstrid BlystadPublished in: BMC medical ethics (2019)
Inadequate use of locally appropriate channels in the dissemination of information created room for interpretation and facilitated development of mistrust, undermining the conditions for community engagement and actual informed consent. A key lesson learnt is the importance of taking seriously the complexity of local values and structures that may impact people's capability to consent or not consent to a study in an informed manner.