Spinal cord issues in adult patients with MPS: transition of care survey.
Kemel A GhotmeFernando Alvarado-GomezChristina LampeKlane K WhiteMartha Solano-VillarealRoberto GiuglianiPaul R HarmatzPublished in: Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery (2018)
Further work needs to be done to address problems of managing spinal cord issues in adult patients with MPS. Currently, the responsibility for the care of patients with MPS with spinal cord issues is inconsistent. The best strategy for transitioning these patients from pediatric to adult care is likely an interdisciplinary approach.