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The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review.

Elin SalmirantaKristina Areskoug JosefssonMarlene OckanderMarika AugutisDaniel Masterson
Published in: The journal of spinal cord medicine (2023)
The voice of caregivers of children and adolescents with SCI in research is limited by representativeness, the pre-determined emphasis, a lack of involvement in the process, and the reported narrative. By reflecting on voice, caregivers can have their experiences and perspectives acted upon to a greater extent to bring change, ultimately leading to improved care and health for children and adolescents with SCI.
Keyphrases
  • palliative care
  • spinal cord injury
  • spinal cord
  • healthcare
  • mental health
  • public health
  • neuropathic pain
  • quality improvement
  • health information
  • risk assessment
  • pain management
  • social media
  • climate change