Healthcare Transition from Pediatric- to Adult-Focused Care in X-Linked Hypophosphatemia: Review and Expert Consensus.

Kathryn McCrystal Dahir Ruban Dhaliwal Jill H Simmons Erik Allen Imel Gary S Gottesman John D Mahan Gnanagurudasan Prakasam Allison I HochPrameela RamesanMaria Díaz-González de Ferris

Published in: The Journal of clinical endocrinology and metabolism (2021)

Clear healthcare transition preparation guidelines and treatment-related goals are defined. Individualized timelines and practical strategies for healthcare transition preparation are proposed to optimize health outcomes resulting from continuous clinical care throughout the patient lifecycle. We provide an expert consensus statement describing a tailored healthcare transition preparation program specifically for AYA with XLH to aid in effective transfer from pediatric- to adult-focused healthcare.

Keyphrases

healthcare
palliative care
quality improvement
clinical practice
young adults
high resolution
mass spectrometry
health insurance