Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review.
Ali VedadiRoula KhairallaAdrian CheAhsas NageeMohammed SaqibAli AyubAghna WasimSara MacanovicAni Orchanian-CheffNazia Selzner-MalekkianiSusan BartlettIstvan MucsiPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2023)
The most frequent PROMs were the SF-36, Nottingham Health Profile, Hospital Anxiety and Depression Scale, followed by the Liver Disease Quality of Life (LDQoL). Very few studies used transplant-specific PROMs, which may partly be related to the scarcity of LT-specific instruments. We will use these results in future qualitative research to identify PROs and PROMs to build an electronic PROM toolkit to facilitate patient-centered LT care.