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Development of an ICF Core Set for adults with cerebral palsy: capturing their perspective on functioning.

Suzie NotenLorenzo A A TroenosemitoChonnanid LimsakulMelissa SelbVincent de GrootManin KonijnenbeltDaniëlle M F DriessenSander R HilberinkMarij E Roebroecknull null
Published in: Developmental medicine and child neurology (2021)
Adults with CP experienced problems in a broad range of body functions and activities and indicated the importance of environmental factors for functioning. The identified categories will be added to the list of candidate items to reach consensus on an ICF Core Set for adults with CP. What this paper adds Including the lived experience is crucial for fully understanding functioning of adults with cerebral palsy (CP). Adults with CP perceive environmental factors as essential elements for everyday functioning. Adults with intellectual disability should be considered as a group with specific problems.
Keyphrases
  • cerebral palsy
  • intellectual disability
  • mental health
  • autism spectrum disorder
  • clinical practice