Patient-reported outcome measures for transthyretin cardiac amyloidosis: the ITALY study.

Alberto AimoLucio TeresiVincenzo CastiglioneAnna Lisa PicerniMartina NiccolaiSilvia SeverinoAssunta AgazioAnna Carnevale BaragliaLaura ObiciGiovanni PalladiniLucia PontiAlessia ArgiròFrancesco CappelliFederico PerfettoMatteo SerenelliGiancarlo TrimarchiRoberto LicordariGianluca Di BellaOlena ChubuchnaFilippo QuattroneSabina NutiSabina De RosisClaudio PassinoClaudio RapezziGiampaolo MerliniMichele EmdinGiuseppe Vergaro

Published in: Amyloid : the international journal of experimental and clinical investigation : the official journal of the International Society of Amyloidosis (2023)

The ITALY questionnaires are the first specific PROMs for ATTRwt- and ATTRv-CA. Questionnaire completion is feasible. ITALY scores display close relationships with non-ATTR-specific measures of QoL.

Keyphrases

patient reported outcomes
left ventricular
heart failure
multiple myeloma
protein kinase
patient reported