Consensus-based expert recommendations on the management of MPS IVa and VI in Saudi Arabia.

Moeenaldeen AlSayedDia ArafaHuda Al-KhawajhaManal AfqiNouriya Al-Sanna'aRawda SunbulMaha Faden

Published in: Orphanet journal of rare diseases (2024)

The consensus statements presented provide specific recommendations to improve diagnostic and treatment approaches, promote multidisciplinary care and data sharing, and optimize the overall management of these rare inherited diseases in Saudi Arabia.

Keyphrases

clinical practice
healthcare
quality improvement
palliative care
electronic health record
social media
big data
health insurance
smoking cessation