What does good care look like to people living with congenital heart disease in the 21st century? Qualitative online, asynchronous discussion forums.

People with CHD and their parents/carers want individualised, person-centred care delivered within an appropriately resourced, multidisciplinary service. Although examples of excellent care were provided it is evident that, from the perspective of patients and parents/carers, some National Health Service Standards for people with CHD were not being met.