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"I'm essentially his pancreas": Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes.

Persis V CommissariatKara R HarringtonAmanda L WhitehouseSabine E HoferSamantha A CarreonMichelle A Van NameDaniel J DeSalvoWilliam V TamborlaneBarbara J AndersonLinda A DiMeglioLori M B Laffel
Published in: Pediatric diabetes (2019)
In families with very young children with T1D, parental perceptions of the burden of managing diabetes are common and could be mitigated by tailored education programs that increase parent knowledge, bolster parents' confidence in themselves, and increase trust in their secondary caregivers to manage diabetes. Reduced parental burden and increased caregiver knowledge may positively impact child's glycemic control, as well as improve parent and child quality of life.
Keyphrases
  • glycemic control
  • healthcare
  • type diabetes
  • blood glucose
  • cardiovascular disease
  • palliative care
  • primary care
  • weight loss
  • mental health
  • insulin resistance
  • risk factors
  • public health
  • metabolic syndrome
  • adipose tissue