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Parents' responses to prognostic disclosure at diagnosis of a child with a high-risk brain tumor: Analysis of clinician-parent interactions and implications for clinical practice.

Myra Bluebond-LangnerNicolas HallKatherine VincentEllen M HendersonJessica RussellEmma BeechamGemma BryanJennifer E GainsMark N GazeOlga SlaterRichard W LangnerDarren R Hargrave
Published in: Pediatric blood & cancer (2020)
Population level prognostic information left parents uncertain about their child's future. The need parents revealed was not for more such information but rather how to use the information given and how to apply it to their child in the face of such uncertainty. Further research is needed on how best to help parents deal with uncertainty and make prognostic information actionable.
Keyphrases
  • mental health
  • health information
  • clinical practice
  • healthcare
  • single cell