Login / Signup

Children's perspectives on the benefits and burdens of research participation.

Claudia BarnedJennifer DobsonAlain StintziDavid MackKieran C O'Doherty
Published in: AJOB empirical bioethics (2018)
Our study describes the experiences of children participating in research at a site that integrates research and clinical care. Our participants described experiences that often go unreported (such as feelings of obligation); we mention these as important considerations to be mindful of when interacting with children as (potential) research participants in an LHS and when thinking about research ethics protocols or the assent/consent process.
Keyphrases
  • young adults
  • mental health
  • palliative care
  • protein kinase